Roller Coaster Week

    Saturday, April 28, 2012, 8:19 AM [General]

    So last appt. the doc decided I did need hyperbaric after all. Though the surgery site is not infected or bad looking, I tentatively agreed to try it bc I know how quickly things like that can go south. At the same time, I can't help wondering if he is suggesting in part for the money. They have three chambers but there seems to be only one guy doing it at present...

    I went in Thursday, did a ton of paperwork and prep and was there a total of five hours!Sorry to say I hated every minute of it. For periods I had to lay still and that was kind of triggering for me. Afterwards, I burst into tears Frown. I told them I didn't think I could do it. The rest of the day I had a headache and was very tired. I have yet to talk in rt with the doctor as we criss crossed on the phone yesterday. He has a very stern/mean side which scares me. I feel like such a failure and am scared of the repercussions of my decision. Depression and desperation was back yesterday as a result.

    I feel like the quality of my life would be bad for the duration of the treatment. And I just barely survived another long, rainy winter.

    Yesterday I took note of how I use my left leg and foot and,i ndeed, things would be SO much harder without!

     

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    Getting the Hang, and Some Good News

    Monday, April 23, 2012, 3:23 PM [General]

    So for a while, I had no photo to upload. During that period, I got several emails indicating that I had messages on this site, but when I clicked on the link I could find them. So if anyone did not receive a reply I promise I did not ignore you. I just wasn't able to access them. Admittedly, I am not a techie in the least.

    It really is so nice to "be" in a place with others who have been through similar experiences. I don't know anyone in rt with an amputation and let's face it, some of our challenges, both physical and mental, are unique!

    I got a bit of good news last week. After my toe surgery (on my only foot), the doc had thought I would need hyperbaric oxygen therapy. It is a huge commitment and would be a severe challenge to my claustrophobia. Anyway, most recently the doc thinks the surgical site is doing pretty well so no hyperbaric, at least for now :). Seriously, if I have to do something like that, let it be in winter when I don't want to be outside anyway.

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    Stressed and Scared:(

    Thursday, April 19, 2012, 2:47 PM [General]

    Hi...again. Lost my user name and other sign-in info. No, I did not have my brain amputated though that might solve some of my issues Cry. I am a middle-aged woman with long-standing type one diabetes with complications. Had a bka two years ago and lost another toe (down to two) a month ago. That site has not healed so I am very scared about the possibility of losing another leg. Then again, my left leg and foot are barely usable due to wounds and severe neuropathy so maybe I'd be better off as a double...?

    I also fight depression which obviously is not helped by limited mobility (cannot drive) and ongoing health concerns. I don't know other amputees in real time so I hope to learn coping strategies and such from others here.

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