Kris

    Mirror Therapy for phantom pain?

    Thursday, March 20, 2008, 12:38 PM [General]

    I was just reading through the news on CNN and came across this article.  It sounds extremely interesting, and I would've liked to have known about this for the first years after my amputation.

    http://www.cnn.com/2008/HEALTH/03/19/mirror.therapy/index.html

     

    I suffered with extremely severe (is there any other kind?) phantom pains for several years.  I've passed out, thrown up, made up completely new cuss words, blamed Homer Simpson, and even claimed I was moving to Mexico once.  Not that any of that stuff helped, it was mostly involuntary anyway.  They were so bad that once, my judgement was clouded from the pain and I pulled out my IV and was hopping towards the 8th floor window in my hospital room, with the intent of jumping, just to make them stop. Lucky for me, a really bad one hit me before I made it to the window and I sorta lost control of my body and fell, giving a nurse time to come into the room and foil my plan. The past few years haven't been that bad, but I'll still get them a couple times a year.

    Hopefully this article/therapy will help some folks that are in a similar situation as I was years ago when I was struggling with the pain.

    0 (0 Ratings)

    What a great find! Thanks for listing the article.
    I've been lucky - only a few minor bouts of phantom pain in the year since the BKA left, which weren't too severe (about 6 on a 1 - 10 scale), but I do have phantom "itches", where the bottom of my left foot itches like crazy, and there is no way I can scratch there. I'll try the mirror therapy to see if that offers some relief.

    Gary
    March 21, 2008
    01:07 PM CST

    Worked on mirror therapy: Man I tried EVERYTHING!

    While I was with my therapist, we tried Mirror Therapy - she even built the contraption out of her good heart. Nothing too sophistacted: but it meant the world to me that she cared enough to build the crazy thing!

    Once set up: I felt sad, overwhelmed,cried, and then carried on the best I could. Did I feel angry and depressed? Of course I did! I saw my f'kng right leg, hip & pelvis for the first time in years! Last I remember, the whole gam was going down the incenterator at UCLA! But I worked through it - feeling like some kind of weird reptile, freak of nature, alien, saint, enlightened individual, dead person, you name it....

    What the hell? How can I admit to my friends that I feel confused? I will just tell myself in the meantime everything will be alright.. that everything will be cool. What else can i do? Sometimes I just don't know how to feel or do... but i'll figure it out!

    Good Luck to You...
    JO

    JO
    August 22, 2008
    03:03 AM CST