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    Support www.ampsurf.org

    Wednesday, December 16, 2009, 04:58 AM EST [General]

    A great organization that could use your help and participation - whether as a volunteer, financial contributor, or an amputee in need of "revitalizing!" There is nothing like the healing power of the ocean. 

    www.ampsurf.org. ...... also on Facebook! AMPSURF   Look us up! 

    In this photo: Bruce, one of the amazingly awesome AmpSurf volunteers presents me with an oil painting of one of my Getty Images surf photos at our annual Christmas Party. He is da bomb and da 'God Fadda'! 

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    International People with Disabilities Day http://www.un.org/disabilities/convention/questions.shtml

    Saturday, December 5, 2009, 02:50 PM EST [General]

    This past week was the International People with Disabilities Day (December 3rd). I realize we have many more rights (in some countries anyway) than in the past, but there is still a lot of discrimination and prejudice. Awareness is key to overcoming barriers - for employment, in the way we are portrayed in film & television (if portrayed at all...) and how we are responded to in public. I have traveled to many countries and have been flabbergasted when I was told I could not participate in an activity or enter certain establishments....YES - it still happens out there in the world. We take a lot for granted here in the U.S., but there are still subtle (and not so subtle) forms of discrimination.

    www.un.org/disabilities/convention/quest...

    www.un.org/disabilities/convention/conve...


     

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    Become a Peer Visitor

    Tuesday, November 17, 2009, 01:51 PM EST [General]

    I was certified as a peer visitor by the ACA within 2 years after my amputation. It has been very rewarding to help others who are facing such difficulties. I remember how much this support meant to me before, during and after my hemi-pelvectomy procedure.

    Recently I recruited my friend Wendy from this >4 site to come along with me to visit a 17 year old girl who recently had a hemi-pelvectomy due to Osteo-Sarcoma. I knew Wendy would be helpful as she had Osteo and had to deal with a lot of chemo. Wendy was wonderfully encouraging and even ended up visiting a young boy two doors down who also had Osteo and had to have a BK (like Wendy). The young woman cried and thanked us for our visit saying how much it meant to her to talk to people who understood what she was going through. I encourage all Less Than Four amputees that feel emotionally ready to become peer certified. The ACA will contact you when someone needs help in your area....

    open this link:

    www.amputee-coalition.org/npn_about.html

    Thanks for listening.

     

     

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    In Response to "Rev" below: Why People Stare

    Monday, October 26, 2009, 03:51 PM EST [General]

    This is my opinion/experience only, so take it for what it is worth to you (which may be absolutely nothing…)

     (1) When some people see people with visible disabilities, they may have an adverse reaction that has more to do with their fears about their own body integrity (i.e. "Could this happen to me?") or fear of their own mortality. It is similar to when people see a car wreck on the side of the road... most everyone slows down to look, right? Why? Curiosity and fear. So you see, it has more to do with them, than the person with the disability. I realize it is still intrusive and sometimes downright rude of them, but it helped me have some compassion for these rubber necking "lookieloos" once I understood that it has less to do with me, and more to do with "them." I now focus on the 90% of the people out there who have been really sweet and supportive to me.

     (2) Another possibility is this man that stared at your son had a form of autism. I volunteer for/participate in different disability events and have met 100's of people with autism by now. Depending on the severity of their case, they often do not have impulse controls. I have had autistic people (usually children) try to lift up my dress to see where my leg went...not just once... they keep coming and trying to find it!  Their caregivers are usually mortified, but I am at the point where I find it humorous.

     (3) Yet another possibility is that this man that was staring at your son was an "amputee devotee" or "amputee admirer". If you don't know what these terms mean yet, then look it up on the site here under "Groups" or Google it and you will get quite an education on this topic! Check it out: 

    en.wikipedia.org/wiki/Attraction_to_disa...

    en.wikipedia.org/wiki/Acrotomophilia

    I am sure there are other reasons people stare... but these are just some of the ones I have experienced. 

     

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    You Are Invited...

    Wednesday, October 21, 2009, 12:45 AM EST [General]

    Any disabled actors, writers, and/or producers here at >4 might find this meeting interesting. It’s sponsored by the Writer's, Producer's and SAG/AFTRA Guilds and will be held at UCLA’s (University of Calif, Los Angeles) School of Film, Theater and Television @ Melnitz Hall on October 24th 9 a.m. - 5 p.m.

    www.iampwd.org/you-are-invited-the-holly...

    Amputees can play more than war victim extras or Cherry Darlings at convention shows! (-:  We are just people leading every day lives and should be portrayed as such on film, stage & television. 

    Although the deadlines for auditions are up, you might want to try (call) anyway, or just sign up and come out to learn what it’s about. 

    Some of the speakers are: PETER FARRELLY (THERE'S SOMETHING ABOUT MARY)
VINCE GILLIGAN*, RJ MITTE (BREAKING BAD)
DARYL "CHILL" MITCHELL, JANIS HIRSCH (BROTHERS)
DAVID MILCH, GERI JEWELL (DEADWOOD), ROBERT DAVID HALL (CSI), DANNY WOODBURN (SEINFELD); LINDA BOVE (SESAME STREET)WITH A SPECIAL VIDEO APPEARANCE BY RICKY GERVAIS (THE OFFICE)

    And here is another interesting article on the topic... 

    www.disabilityrightsca.org/news/Back_Sta...

     

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