Since having my new suction socket a week or two. I have noticed a couple of things that have helped me keep suction with the liner and socket. BUT each and every day I loose suction at some point and IDK why that is. Obviously if I knew why I wouldn't do it and I want out of this wheelchair so any advice is well appreciated. It is getting somewhat better. This Saturday I started out walking on it quite a bit when putting it on to build up a tighter so called suction if that makes sense. A few days earlier I put it on and then sat at the vanity to prepare for the day applying make up and such. I noticed a few puffs of air as it was loosing its suction before it falls off into the floor...not even having it on 30 mins total. Saturday my daughter had an archery tournament so I allow extra time to walk putting it on and spraying the inner socket to help create a suction. That did help. I prepared for our day and drove 45 minutes to her tournament did a good amount of walking on crutches to the seating area from my car. Sat through the competition and then walked to my car. I drove another 15 minutes to the cemetery where my father and grandparents are burried, but when I arrived there I couldn't walk there due to the condition of the lawns...so I stood by my car and my husband visited the burial spots. I returned to my car and drove another 20 minutes to my older daughters home...I got out of the car and the leg is falling off. Does that make any sense at all? I've tried talking to my prosthethis about this to try to figure it out so I could make it stop and I could get better and more consistent use of this socket system. Consistency is going to be key to learning to walk and being able to depend on its abilities. Keep in mind that the shuttle socket NEVER fit well and I could never advance in any fashion with it. Having it for a full year before fighting insurance to get a new socket. I can't keep getting things that don't fit or don't work as I need them to and expect progress. Yes I know that sounds a bit frustrating and I promise when I tried to speak with my prosthethis I did not do it with this type of tone. She told me that she thinks that I am obcessing with it and I should just give it time. I've also heard statements like well they aren't going to fit right away...it takes time. Really???? On February 26th was the 2 yr mark on my surgical amputation. Just after my surgery I did develope 5 different bacterial infections in my incisions that each took a different antibiotic and time to heal...I got past that and a good deal of shrinking and stabilizing and it wasn't until November that I got a prescription from my surgeon to get the prosthetic leg. I had it a month later, but for an entire year it didn't fit and didn't work for my needs, strengths, and abilities. So how much is a normal usual amount of time to allow for things to fit and work properly. While doing the test sockets she was running into a time crunch to get the socket within the time frame insurance approved the payment for the socket for...apparently they have so many days to produce the said socket. She drove to me on the very last day to get me a socket before insurance would require new authorization for the same socket. I'm wondering if she rushed the fitting using a test socket that wasn't quite right hoping to make it work. I don't know but I am a bit frustrated with the responses. I'm obcessing...and its not going to fit right away...I've shrunk a considerable amount and have a large amount of flabby flesh to show for it...doesn't seem there is much left to shrink. So I'm not changing since she's done these test sockets or gave me the finished socket. I was a little apprehensive to accept the socket with the "it takes time to fit or it won't fit right away"...why not...when I buy a pair of shoes they are expected to fit at the time of sale or in my mind. I couldn't help but thinking all along the first socket never fit from the beginning and I didn't want that to happen again. I wanted to make sure it fits perfectly well. What little I know about prosthetics I do believe the socket shape and size to be adequate, but IDK why I'm not getting a tight seal that will last through out the day. Any advice or imput would be appreciated.
Blair, btw...I asked about when you push your valve button in you hear a pop and wondered why I do not...I get a gentle like breathy feeling is all I get. She said that could be the difference in valve manufactures. But she kept discounting what I've learned from various people, because theirs were accidents or they were healthier and I can't compare the two at all. So IDK. I think I should be able to compare them...you have two very healed legs...true you are healthier and more muscular...but the devices should fit and work the same in my line of thinking. However if it weren't for talking with others I would know nothing about any of it, because I sure didn't get a manual or any printed material or advice on what to expect or when to expect it or what would be normal. For me they cut it off told me how to care for the wounds and sent me home with nothing more than that.
So IDK wondering and begining to get frustrated. I don't mind doing my part and what I need to do, but don't make it more harder than it already is. Just give me directions, tell me what to do and I will somehow and some way achieve what I need to do to fulfill my end of this situation.