So sorry I've been gone for quite a bit from the site. I will try to catch up here in the next few days. Just been jumping through hoops and medical testing to gear up for surgery on the other leg (the remaining leg) and to see if anything at all can be done to save my arm.
Im having pains with the new x5 liner although it does give a tight suction and keeps the leg on finally. After about 30 minutes of having the leg on it feels as if its swelling, but also the phantom parts of my leg are also having those pains and feeling as it is swelling and going to rupture. After about 30 minutes I have to pop it off. BUT...its not really swelling, because when I take the leg off and put it right back on...it goes on as slick as butter. It wouldn't do that if it were truly swelling. I haven't worked with it much in the past few weeks, because I know I can't tolerate standing on the remaining leg hardly at all. Testing has confirmed there are blockages in the arteries in my right leg. How severe it is I can only guess by the pain level until I see the new surgeon this week. My former surgeon retired. The new one is a single surgeon without an entire team backing him up. Which can make things go much slower to fit all his patients and their needs in. So June 15th I will see him to hear his plan of treatment. Then after he attempts to fix my leg and I recover...there should be no stopping me then. Then only remaining issue will be to figure out what's going on with this liner. I can wear the liner all day long and it not bother me until I put the leg on. So if anyone has any valuable input I would greatly appreciate it. My CP has a habbit of saying well you have all these other issues, so we don't really know. I asked the new surgeon and he said there is no reason he can think of that the stump would be causing this problem. I'm also going to see my family doctor so she gives it a clean bill of health too, so I can say no we've ruled out any possibility its anything with the stump at all. So lets figure this liner out. The only other thing I can think of is that possibly its too small and in need of a bigger liner. Is that possible? Surgeon said all my problems now are in the remaining leg of blockages. Hopefully there is a graft they can replace to open up flow again. It's not the same condition as caused my loss of the left leg. The left leg had MRSA inside a popiletal graft they put in to open flow in that leg. After 11 mos of the infected device being inside of my leg just caused it to colonize and become so disease and created numerous blood clots it couldn't be saved if I wanted to live.
I hope everyone else is doing well with their devices and limbs. But for me get the right leg fixed and this liner issue straightened out then there should be no reason I can't begin PT and learn to walk. Finally!!! I'm now at 28 months since loosing the left leg above the knee. Way too long for me. I never dreamed it would take this long to get me out of this chair. But the blockages in the right one won't let me do more than a couple of steps on crutches before the pain becomes too intense to continue. By that time tears are flowing from pure pain.