Hi, this is for those of us who have endudered and still do endure the nightmare of phantom limb pain (PLP). I am really curious about what medications any of you have been prescribed and the side effects. Even if your not on them anymore. Please do tell. I think it could be helpful to many of us. Maybe you can tell about what your PLP felt or feels like and what meds have been tried if any and what has helped. Also what side effects do you get and is it worth staying on the meds long term.
I really don't want to go into to much depth here. I will lose everyone if i do.I went in for my 68th surgery on Sept 24, 1996. It was suppose to give me a better quality life and less sedentary lifestyle. Well if I would of ever known what my PLP was gonna be. I would still have the decreped leg. This has been an ongoing battle for 11 years and it's way more of an inconvienence than having one leg anyday.The severe pain began 3 days after i was home. It feels just like my foot did when i was in the burn unit for a degloving injury to my entire right leg fom mid thigh to mid foot. Complete loss of heel.Multiple other injuries. My foot feels like it's in a downwards position,on fire, with pirahna attacking it, with a semi truck on top and sorta ice cold while feeling on fire. Over 15 different meds have been tried with numerous side effects. The most helpful is methadone and cymbalta. I really want to find out others side effects, whether you at at rest, or active. Does it change and if you ever did go off the meds to just go back to the life draining, mind blowing Pain. I look at PLP as F-in Insanity. Thank goodness it has become more tolerable but at times it's a 10 and i hate the medication side effects. Please respond.Thank you
Hi staci,
Abemay God give u the strength to deal with your pain. 68 surgeries, i think that is a record. man i thought mine was a high number...
but more to come about that later...
for my PLP i was prescribed cybmalta too, but due to its ill effects, and potential for long term need, i switched over to Neurontin (im not sure i spelled that right). it started at 100mg 4 times daily, and gradually went up o 600mg 4 times. i started freaking out at this point cuz i was nearing the maximum allowable dosage for it. I started skipping doses in an attempt to weaned myself off the drug and got severe restlessness. at one point i went 4 days without any rest...but eventually i started improving...ive stopped taking it completely for the last 6 months. i do get bouts of PLP occasionally but for the most part i am free of it. i had several side effects, but am not sure which were caused by what drug. For 18 months i was pumped up with a variety of stuff. But it is all behind me now. I'm sure you will not have to deal with it much longer. stay strong and try to occupy ur self with anything else when u feel the pain coming on.
may God be with u.
ps the active ingredients name is gaba-pentyn
03:50 AM EST