Hi, this is for those of us who have endudered and still do endure the nightmare of phantom limb pain (PLP). I am really curious about what medications any of you have been prescribed and the side effects. Even if your not on them anymore. Please do tell. I think it could be helpful to many of us. Maybe you can tell about what your PLP felt or feels like and what meds have been tried if any and what has helped. Also what side effects do you get and is it worth staying on the meds long term.

I really don't want to go into to much depth here. I will lose everyone if i do.I went in for my 68th surgery on Sept 24, 1996. It was suppose to give me a better quality life and less sedentary lifestyle. Well if I would of ever known what my PLP was gonna be. I would still have the decreped leg. This has been an ongoing battle for 11 years and it's way more of an inconvienence than having one leg anyday.The severe pain began 3 days after i was home. It feels just like my foot did when i was in the burn unit for a degloving injury to my entire right leg fom mid thigh to mid foot. Complete loss of heel.Multiple other injuries. My foot feels like it's in a downwards position,on fire, with pirahna attacking it, with a semi truck on top and sorta ice cold while feeling on fire. Over 15 different meds have been tried with numerous side effects. The most helpful is methadone and cymbalta. I really want to find out others side effects, whether you at at rest, or active. Does it change and if you ever did go off the meds to just go back to the life draining, mind blowing Pain. I look at PLP as F-in Insanity. Thank goodness it has become more tolerable but at times it's a 10 and i hate the medication side effects. Please respond.Thank you

                                            Some people come into our lives and quickly go...

                                             like an ocean wave when it touches the shore...

                                             or a cloud that is there, and then gone.

                                            Some people stay for a while and although we

                                             may be unaware they are touching our lives

                                             in a special way. When they are gone, it is

                                              then we understand...they have left footprints

                                               on our hearts and we will never ever be the

                                               same. That is when we know...blessed are we

                                                                                         Flavia Weedn

           I truly feel that in life we meet people and may share                     

            hopes, dreams, tears, our fears and cares. It may be a                    

         a brief encounter  like  someone you meet in a doctors waiting 

        room or in line at the grocery store. You will probably never

       see one another again but you leave that tender moment in

      your memory and thier footprints on your heart .